“My intellectual work, I now know, is an outgrowth of the life I’ve led. It has transformed whatever traumas I’ve survived into something useful for myself, and I hope, for others. My work has changed my life. My life has changed my work. … I know that my work must be accomplished in the face of uncertainty and chaos, when instability threatens to engulf me, to spin me out of control, for only then will I achieve a clarity of vision that comes when I try to integrate my life’s work with my life. … Now, and not later, I will try to understand.” Louise deSalvo, Vertigo
Why am I continuing to write this blog now that my terrifying “really bad brush with breast cancer story” has come to a happy ending? Perhaps I should stop writing. But I am not ready to stop writing about this – either my own experience, or what I have learned about the terrifying “facts” of breast cancer and the not unrelated gruesome details of the pink politics of breast cancer cash, the cancerocracy, and the misuse of breast cancer by major corporations to brand their products to the boomer generation with those fucking ribbons.
Breast cancer does not ever disappear, nor is it “cured.” And we are living in the midst of an epidemic of breast cancer. Cancer’s return overshadows life itself. Yesterday a friend sent me an article about the relationship between daily consumption of vegetables and “cancer’s return.” What blew me away about the article is not that an excess of vegetable consumption is unrelated to breast cancer survival, but that within time elapsed in the five-year study, a whopping 10% of the study participants had died – and these were “women who had been treated successfully for early-stage breast cancer.” Holy shit. 10% of early-stage, success stories of breast cancer treatment have died after five years, and we are supposed to be thinking about vegetable consumption? What is wrong with this picture?
All I can think about when I wake up is – it just takes one rogue cell — yeah I know that I am not being the compliant happy heroic figure of my own tragedy. But that is all it takes for metastatic cancer to set up shop in the other places breast cancer likes to live – about 25% ea for bones, lungs, liver and brain. And my life, or at least prognostically speaking, hangs on the competence of the guy who reviewed my pathology specimens. And they don’t look at it all, of course. They just look at slices.
That’s the thing about cancer. Well, one of the things. It’s never over. No sooner do they tell you about the pathology report, then in the next breath is information about recurrence.
I wish I could be more cheerful today and celebrate the happy news about my pathology report. I am supposed to feel like I have been handed my fresh new identity card for a “second life”. But actually, there is no second life. There is just this life. And I have work to do, now, with this life that I inhabit. And so I will keep writing. I will write to save my life — as if writing might save this life. As deSalvo articulates so beautifully, “Now, and not later, I will try to understand.”
July 19, 2007 at 6:24 pm
Hi! I’m delurking to say “Congratulations!! That’s wonderful news!”
My own advice (which I offer with the understanding that you can cheerfully tell me to shut up) is that you are entitled to feel weird: you were gearing up for a big damn fight, and it’s been postponed indefinitely. At the same time, your sense of longevity has been threatened…I think we all felt that way, feel that way, and mourn, a little, the pre-cancer innocence we once had.
I hope you never have to write about cancer again as a cancer patient in active treatment, I hope it’s all maintenance and screening from here on out. And I hope that for all the rest of us, too.
But PLEASE keep writing, I’m enjoying the hell out of it!
July 19, 2007 at 6:59 pm
hey there pocketina — love your blog — saw that you had post-mastectomy seroma — how long did it last, and did anything help to resolve the seroma? I am going buggy at the thought of more aspirations, which I know seems very petty, compared to the mastectomy itself, but I think I have exhausted all my resources of butch toughness and the well is dry. Let me know if anything worked, or after a few weeks it all went away, or what-eveh…
July 21, 2007 at 12:29 am
Wow, thanks!
Ah…seromas. What joy. Mine lasted about a month, but only had to be drained once, and got smaller over the following weeks. You’re still pretty fresh from the O.R., so you may have a few weeks of fun seroma goodness, yet, I guess.
I then promptly went out and got lymphedema, which, at 5 months out is still snarling up my daily life. Try not to do this. It’s not as much fun as it sounds, and the accessories are BEIGE. Yech.
Give me a shout if I can help you in any way, ok?
Peace!
July 21, 2007 at 3:11 am
Never say cured – that is what they told me – I was only ever in remission, so I lived with an open ended death sentence – but, hey doesn’t everyone. Every lump is the rogue cell returned -including the one in my arm (yeah, I know, no-one ever got arm cancer in the history of the world – but with my luck!!)
22 years in remission this August…
…and having geared up for battle I understand it’s a sudden let down at not getting to fight!
as an inside – I read or heard somewhere that pink was associated with boy babies (red as a power colour was associated with the masculine in West Euorpean countries and North America and thus pink for boys) until after world war II when pink becasme asosocated with the feminine, in part because of Hitler’s pink triangles for gays in the concentation camps. Can’t remember where I heard or read this (my menopause symptoms have consisted so far of eating holes in my memory) or if it is just some urban myth – for grist for the mill of social construction….
My delighted hyper hugs for the good news…. luv
Tess